Saturday, January 21, 2017

Eight

Our Joey turned eight last Saturday. We had a quiet celebration over at Bubba and Grandpa's house where she made his favorite dinner of spaghetti and meatballs. Grandpa Murphy and Miss Suzanne joined us, too. I made an attempt at a Pokeball cake, which he loved.

 



Our son, our treasured son, is such a homebody that he opted not for big festivities this year. I ran twenty different scenarios by him of fun things we could do, but when it came down to it, he just wanted to be home and asked for his best friend Mason to sleep over on Sunday. I love that about him--he's so easy to please with the simple things. We ordered Chinese food and the boys played Xbox and enjoyed their time together.

I have a hunch this is going to be a good year for Joseph. He's working on overcoming some big hurdles still, but I feel some major breakthroughs coming his way. He's grown so much and continues to amaze us. He's such a good boy. And eight looks great on him.

Wednesday, January 4, 2017

Survivor

After Lulu's MRI in the fall, we received a follow up call that pretty much indicated "nothing really new" was learned from the images, so when I made Lulu's follow up appointment that required us to wait a couple of months, I hadn't expected to learn what we did today. And, honestly, I wasn't prepared to see the images that I saw. I won't be posting them publicly because they belong to her, but I wasn't prepared--at all--to see such a sizeable gray space on our daughter's brain images that it forced me to gasp for air. She is a walking miracle. And, honestly, Lulu amazes me even more now knowing what a fighter our girl is.

The images gave evidence of a significant bleed, and based on the nature of the damage, the neurologist believes that Lulu's brain injury occurred before 28 or 29 weeks of gestation. And based on the placement of Lulu's not one--but two--injuries on opposite sides of her brain, she also surmised that Lulu may have been injured intentionally--that she may have survived an abortion attempt. Yes, you read that right. I can't even type it without tears flooding in. I don't want to engage in a pro-life debate here, but to think that this beautiful child may have survived an act that would've erased her presence from this very world? How do we even digest that? How do I ever thank God enough for this precious gift? We'll obviously never know the whole story of Lulu's rough beginnings and whether this is truly what happened to her in utero or not, but we can surely praise our ever-loving Father for breathing life into Lulu, for protecting her against all odds, and for giving her to us.

As far as the damage, we can also thank God for making babies brains with such incredible plasticity. Had Lulu suffered this type of injury later in life, it may have taken so much more of her movement and function away. I asked how all of this will affect her. The neurologist said she's not one to predict the future. Lulu is dealing with a compound effect given her institutional delays, but she is doing so incredibly well, and God made her with one heck of a determination. She is crazy bright and so full of personality. The doctor explained the damage in this way: Imagine a small office of ten people who are maxed out in their workload, and then three of them are let go. Now you have less people with an overcrowded workload and that results in some issues...some things fall through the cracks, some things are forgotten, some mistakes are made, and they get angry and handle things the wrong way. You get the picture...that's what's happening in Lulu's pretty little head.

When Lulu was recently baptized on the fourth Sunday of Advent, as we waited to celebrate the birth of Jesus with expectant hope, my mom and dad gave her a beautiful "Simple Blessings" cross and wrote this, "The small simple cross is a symbol of the power of simple blessings. Lulu is twice blessed; first by surviving a difficult birth, and secondly by catching the eyes of Lisa and Jimmy Murphy.  That is “Spiritual" fate." When my mom wrote that, she had no idea how much of a survivor her granddaughter truly is. I pray those waters of baptism will continue to heal her and protect this precious child even more...I pray that her life will glorify God in the same miraculous ways in which she was born to live on this green earth. We baptized her with the name Jane (her middle name) meaning "Gift from God." And that she surely is. Praise to you, Lord Jesus Christ, King of Endless Glory.


Jeremiah 29:11
For I know the plans I have for you,” declares the Lord,
“plans to prosper you and not to harm you, plans to give you hope and a future."